This discussionn about aging with CP has been really useful for
me. I am 23, and for the last 7 yrs or so have felt that very
slowly, my cp is getting wosre. Obviiously I don't feel it on
a day to day- even a year to year level- but I can look back at
things I used to do without any probs- ie handwrite a 6 page
letter- and see that yes, it is changing., I a way my parents
have had a harder time coming to terms with it than I. I guess
out of love for me they don't want to see that I'm suffering,
etc.... My mother is still in denial, any time I talk about
how I feel it's getting worse, and how I am a bit fearful of the
future (I don't live in fear, obviously, b/c there is no point
to that, but I am aware of something- maybe anxiety- deep down
inside me), she says things like "Maybe by thinking so
negatively, you WILL bring this upon yourself." That kind of
attitude really annoys me..... I think- like bobby pointed out-
that through my childhood, my parents were reassured by
specialists that its "non-degenerative" b/c the brain damage
obviously doesn't change, but what they don't take into account
is that the wear and tear on our bodies is perhaps more than
that of TAB's, and (*in my case, anyway) any thinhg I do, ie
typing this email, feeding myself) is taking more energy than it
would if I didn't have to control the spasticity by keeping my
muscles tense....
Anyway, there's my two bobs wo
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