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Subject:
From:
Michael H Collis <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 7 Feb 2002 12:10:23 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (55 lines)
Dantrium will harm your liver.  I would not take that...
mike


-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of Salkin Kathleen
Sent: Thursday, February 07, 2002 8:26 AM
To: [log in to unmask]
Subject: Re: Medications for Dystonia?

Jenn,

I don't know if this would help but my neuro has prescribed Zannaflex.
There's also Dantrium which I've taken in the past.

Kat
----- Original Message -----
From: "Jennifer Zubko" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, February 07, 2002 8:18 AM
Subject: Medications for Dystonia?


> Hello Everyone,
>
> As most of you know by now, my treating physicians/ nurses here in
London
> now think that the majority of my probems related to excess muscle
tone
> and pain come from dystonia and not spasticity. The selective dorsal
> rhizotomy got rid of the spasticity, but it is the dystonia that
causes
> painful spams, constant movement, inability to sleep, etc. No one knew
I
> had dystonic movements until after my rhizotomy. Now that I realize I
must
> wait months to have the Intrathecal Baclofen pump implanted, are there
any
> medications besides oral baclofen that have helped with regards to
> dystonic movements and pain for your children? I can't even describe
the
> pain. I am taking morphine but even that has minimal effect because my
> muscles are so tight.
>
> I ask you not to include Baclofen in any lists you might make for me
> because I have developed tolerance to the drug. I have called the
nurse
> who works with my neurologist about this and left a message. Figure it
is
> better than e-mailing the man, LOL, but wanted your opinions.
>
> Thanks,
> Jenn

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