for 1 1/2 yearrs ago i got a brain stimulator which changed my  life. I
was  not trying to "fix" myself but one thing  for sure I would rather be
deaf than having Dystonia.....
Asdis.
At 17:28 9.11.2001 -0800, you wrote:
>Oh please give me a break.Do I want to "fix" Alex?
>Heck no, he is a terrific little guy in his own right.
>Do I want to lessen his spasticity? You bet I do as
>much as possible. Is that not accepting his
>disability? Not at all. As things stand today he'll
>have CP for the rest of his hopefully very long life.
>His CP affects his GI system. The spasms of the
>digestive muscles when he was an infant was such that
>he vomited every meal. Should I have accepted that
>spasticity and watch him waste away and refuse to do
>the fundoplication and have the feeding tube placed.
>Should I have just accepted the spasticity and watch
>him waste away( he** he almost did, he was all of 16
>pounds when they did the surgery at 18mo) What I don't
>accept is the notion that since he has brain damage he
>isn't worth the treatment.
>Should I have accepted those spastic little arms and
>hands that got stuck close to his torso and not enroll
>him in intesive PT. Heck no or I would have missed
>that very first hug he was able to give me all by
>himself when he was  2 1/2. What I won't accept is
>that because he has CP he isn't worth the money for PT
>to the insurance companies. Should I have accept those
>spastic little legs and feet that kept pulling him
>over and never enabled him to use his hands. Should I
>accept the spasticity that prevented him from walking
>and joining his classmates. It really is hard to be on
>an equal level with your peers when your view of your
>classmates shoes because spasticity keeps you from
>achieving anything but an ants view. Or should I have
>done the research and soul searching and allowing the
>SDR surgery that did lessen his spasticity so he can
>now use a walker and a wc independantly. I will not
>accept however denying him a chance to stand proud
>with his friends. He will always have spastic quad CP
>but your darn tooting I intend to enable him as much
>as possible.
>Joanne
>
>
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Asdis Jenna Astradsdottir.
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Iceland.
:
Faith, Hope and Love.