Hi! I am a newcomer to this list. I live in Michigan and have 10-year-old
twin girls (born at 26 weeks), both with disabilities. For some background,
Ashley (twin A) was born weighing 1 lb. 6 oz. She is blind in her right eye
and very near-sighted in her left. She has mild CP on her left side. She is
currently in 3rd grade and is doing very well, considering she is learning
Braille. She does get PT at school and tries so very hard to do things just
like the other kids. She is having difficulty learning how to ride a bike.
She admits to her fear of falling off (I truly am fearful that she won't be
able to see cars). My other daughter, Breanne (twin B) weighed in at 1 lb.
15 oz. She is severely multiply impaired--has CP on her right side, blind in
both eyes, 2 shunts for Hydracephalus (had a trache from the time she was an
infant but was decannulated in September 1992); seizure tendency (has only
had 2 to speak of). Breanne can't do for herself and is in a wheelchair.
The good news is that she has made alot of progress, but now that the girls
are getting older, I am trying to prepare myself for puberty.
In a nutshell, here is my question . . . In Ashley's case, she will be able
to learn how to shave and take care of her own hygiene. In Breanne's case,
however, I am wondering about the shaving. She has gotten a headstart on her
sister with the hair growth, so now I'm thinking "My gosh, it's coming!".
For anyone out there, how did you deal with puberty? My husband is also a
wreck about having to deal with it. Will I need to shave Breanne's arms and
legs as all women do as they get older?
Any insight is greatly appreciated. I look forward to hearing from some of
you.
Nancy Butala
Michigan
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