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Subject:
From:
Asdis Jenna Astradsdottir <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 17 Apr 2000 18:39:02 +0100
Content-Type:
text/plain
Parts/Attachments:
text/plain (69 lines)
yes in my case it did, but now i have neurostimulator which helps me to
control my body,no more back pain, clear speech and much happiness. More
balance. :-).
Asdis athetoid dystonia cp and hoh.
At 13:23 17.4.2000 -0500, you wrote:
>Does every case of Cerebral Palsy get worse?  Kathy Pink
>
>
>
>
>
>
>AOL Instant Messenger ScreenName KJPink
>ICQ UIN # 16632777
>http://homepages.msn.com/WindowsWay/kjpink/
>SafetyEd International's WebSite:  http://www.safetyed.org
>----- Original Message -----
>From: Bobby Greer <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Sunday, April 16, 2000 5:20 PM
>Subject: Re: Thanks for volunteering!! (NM Article)
>
>
> > In a message dated 4/16/00 9:11:04 PM, [log in to unmask] writes:
> > Bobby Greer, mild CP
> > 62 yrs old
> >
> >
> > <<  1. What are the things that cause you the greatest concern when you
>think
> >  about growing older with a pre-existing disabilty?
> >
> > That the disabilities will get worse,ie., poorer balance, more muscle
> > tightness and soreness, etc.
> >
> >  2. What are some things you are looking foward to as you age?
> >
> > Retirement I think, being free of work, enjoring grand children
> >
> >  3. What do you wish your primary care provider knew about treating folks
> > with life long disabilities?
> >
> > Have had no problems this way. I have other non-CP related health
>problems,
> > hypertension, heart trouble, etc.
> >
> >  4. What kind of supports do you think you will need to continue to live
>your
> > life in the way you choose as you grow older?
> >
> > I am not sure what you me by "supports"
> >
> >  5. If you could change one thing (big or little, stricly personal or with
> > implications for others) to insure that you would "age well" what would
>that
> > be?
> >
> > Take better care of my condition, eta right and excercise
> >
> > Bonnie if you want more specifics ask me.
> >
> >  The questions are just a guide, other thoughts are always welcome!
> >
> > Also contact me privately if talking on the phone is easier than typing
> > extensive e-mails.  I'll try to call you from my office (shhh! ;-))
> >  Bonnie (the "old" woman with CP)
> >  and Claude (the almost three year od service dog)
> >

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